OpenHDI · Open Health Data Impact

The aim of the West Midlands Regional Children’s Tumour Registry is to obtain data on all children up to 16 years of age who are diagnosed with or treated for cancer or benign brain tumours in the We…

Registered study from PHE data release register (2017 to 2020) and UKHSA approvals register (2022 to 2024). Evidence status: source reported.

Organisation
Birmingham Women's and Children's NHS Foundation Trust
Published
2019-05-03
Source reference
ODR1617_219/R2
Jurisdiction
England
Licence
Open Government Licence v3.0 (Public Health England, © Crown copyright 2020)

Applicant: Birmingham Women's and Children's NHS Foundation Trust · Data: National Cancer Registration and Analysis Service · Personally identifiable data · Legal basis: Regulation 2 (s251) · Released 2019-05-03

Source: https://www.gov.uk/government/publications/phe-data-release-register. Captured 2026-10-30.

Limitations: A release as Public Health England's Office for Data Release recorded it, April 2017 to September 2020. It shows PHE data was released for the project, not what the project produced. Rows for the same reference are merged; amendments ("/A1") and renewals keep their own references. The free-text technical summary, purpose, benefits and funders columns are not stored. COVID-19 data shared through PHE's National Incident Coordination Centre is not included. The register was withdrawn in May 2022 and is not updated.