OpenHDI · Open Health Data Impact

A clinical audit of the Wolfson Institute of Preventive Medicine (WIPM) Antenatal Screening Service to estimate the detection rate and false positive rate for Down’s Syndrome, Trisomy 18 and Trisomy…

Registered study from PHE data release register (2017 to 2020) and UKHSA approvals register (2022 to 2024). Evidence status: source reported.

Organisation
Queen Mary University of London
Published
2017-09-28
Source reference
ODR1617_206
Jurisdiction
England
Licence
Open Government Licence v3.0 (Public Health England, © Crown copyright 2020)

Applicant: Queen Mary University of London · Data: National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) · Personally identifiable data · Legal basis: Direct Care · Released 2017-09-28

Source: https://www.gov.uk/government/publications/phe-data-release-register. Captured 2026-10-30.

Limitations: A release as Public Health England's Office for Data Release recorded it, April 2017 to September 2020. It shows PHE data was released for the project, not what the project produced. Rows for the same reference are merged; amendments ("/A1") and renewals keep their own references. The free-text technical summary, purpose, benefits and funders columns are not stored. COVID-19 data shared through PHE's National Incident Coordination Centre is not included. The register was withdrawn in May 2022 and is not updated.