STEADFAST Modelling the associations between wider health and social characteristics and diabetes-related health - Substantive data flows to ONS

Data-sharing agreement from NHS England Data Uses Register. Evidence status: source reported.

Organisation: CARDIFF UNIVERSITY
Published: 2026-09-11
Source reference: DARS-NIC-669962-W1F6D-v2.3
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-669962-W1F6D-v2.3
Applicant type: Academic
Data controllers: CARDIFF UNIVERSITY
Agreement period: 2026-09-11 to 2027-09-10
For commercial purposes (as marked in the register): No
Release files listed by NHS England: 0

Data approved

National Diabetes Audit

Objective, as published

Cardiff University requires NHS England data for the research study: “STEADFAST - The personal cost of health conditions in childhood”. Cardiff University’s overall aim is to quantify the links between educational outcomes and diabetes-related health outcomes, for example, how educational settings influence blood glucose levels and the time to onset of diabetes-related complications. This linkage of diabetes and education data for England and Wales arose from work by Cardiff University modelling whether rates of hospital admissions for young people living with diabetes were higher than for their peers without diabetes. The purpose of this study is to provide a greater understanding of the interrelationship between diabetes-related health and education. The substantive motivation for this study is grounded in the evidence that most of the costs arising from diabetes come not from the day-to-day care and medications, but the complications arising from elevated blood glucose over the life course. There is currently limited evidence on the causes of less optimal diabetes management and the potential mechanisms for interventions to improve this. Thus, this study hopes to broaden the evidence base beyond the purely clinical factors to investigate the wider health and social determinants of diabetes-related health, using linked administrative data and focussing on education. Children of school and university age with diabetes are most frequently living with type 1 diabetes, account…

Expected benefits, as published

Although laws exist in England and Wales to support people with health conditions in schools and universities, the legislation (and associated guidance and resulting practice) does not always meet the child's needs. In schools, there is a gap between support for special needs (which stems from the Children and Families Act 2014 and traditionally focused on support for ‘learning conditions’, e.g. dyslexia) and support for children with health conditions (which stems from the Equalities Act 2010 and traditionally focuses on support through reasonable adjustments). In universities, students lack clarity on how financial support for health conditions works, particularly for conditions like diabetes, where there is wide variation in the required amount and type of support. Students will also b…

Benefits reported by the applicant

As of 29/7/2026 the data is still with ONS Data Quality Assurance team, it has now been in this stage for 13 months, the research team (i.e. the data controller, Cardiff University), still do not have access to the data to start analysis.

This is the applicant's own account; OpenHDI has not verified it.

Source: https://digital.nhs.uk/services/data-access-request-service-dars/data-uses-register. Captured 2026-11-05.

Limitations: Data-sharing agreement as published in NHS England's Data Uses Register. An agreement permits access; actual data releases are listed separately. Expected and yielded benefits are as reported by the applicant and have not been independently verified. Long text fields can be cut off in NHS England's spreadsheet export at Excel's 32,767-character cell limit.