STEADFAST Modelling the associations between wider health and social characteristics and diabetes-related health - Flows into DHCW and SAIL for linkage in SAIL

Data-sharing agreement from NHS England Data Uses Register. Evidence status: source reported.

Organisation: CARDIFF UNIVERSITY
Published: 2026-08-03
Source reference: DARS-NIC-158283-T2Q2D-v5.2
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-158283-T2Q2D-v5.2
Applicant type: Academic
Data controllers: CARDIFF UNIVERSITY
Agreement period: 2026-08-03 to 2027-10-12
For commercial purposes (as marked in the register): No
Release files listed by NHS England: 0

Data approved

National Diabetes Audit

Objective, as published

This Data Sharing Agreement permits the retention and further processing of the data provided under previous iterations of this Agreement for an interim period. Cardiff University requires National Diabetes Audit Data for use in a research project, ‘Investigating interrelationship between diabetes and children’s educational achievement’, which aims to model the association of the relationship between wider health and social characteristics and diabetes related health and better understanding the effects of educational trajectories, experiences and outcomes on diabetes management. The background to this study is the evidence that most of the costs arising from Type 1 diabetes come not from the day to day care and medications but from the complications arising from sub-optimal management over the life course, yet the causes of sub-optimal management are poorly understood. An aim of this study is to broaden the search beyond the purely clinical setting to investigate the wider health and social determinants of diabetes related health, using linked administrative data and focusing on education. The project aims to quantify the links between diabetes related health trajectories and educational trajectories. Diabetes related health is measured using HbA1c, a proxy for blood glucose management control which is measured regularly as part of diabetes clinical management and recorded in the diabetes audit data. Educational outcomes are recorded from the time a child enters school unti…

Expected benefits, as published

The outcomes of the study will provide clinicians with a robust quantification evidence for the links between education factors and diabetes-related health (defined using HbA1c measures from the diabetes audit data) for both children, young people and adults. The findings will be shared with clinicians both through academic publications such as BMJ, Lancet Diabetes Endocrinology, Diabetes Care and through presentations at national forums, Diabetes UK & Brecon Scientific Meeting. The team have already presented the planned work to a national meeting of diabetes clinicians and the response was that such evidence would be useful to help them include educational factors in the way they differentiate practice. The work on children in schools will focus on how rates of absence and attainment tr…

Benefits reported by the applicant

Cardiff University produced a research study in the world's leading clinical diabetes journal outlining the variation in outcomes for children with type 1 diabetes. This included additional analysis for children by age of diagnosis, different levels of diabetes management. Through this study, evidence was also provided based on analysis of the Welsh data, to the new Additional Learning Needs Bill for Wales and the Special Educational Needs and Disabilities Green Paper in England, though these are yet to report their findings so have not yet resulted in any change in practice. To support public involvement and engagement, the study team has given presentations of the results obtained so far to practitioners (e.g., the Royal College of Paediatrics and Child Health annual conference, the Bre…

This is the applicant's own account; OpenHDI has not verified it.

Source: https://digital.nhs.uk/services/data-access-request-service-dars/data-uses-register. Captured 2026-11-05.

Limitations: Data-sharing agreement as published in NHS England's Data Uses Register. An agreement permits access; actual data releases are listed separately. Expected and yielded benefits are as reported by the applicant and have not been independently verified. Long text fields can be cut off in NHS England's spreadsheet export at Excel's 32,767-character cell limit.