DERBY TEACHING HOSPITALS NHS FOUNDATION TRUST: This is a study of the epidemiology of coeliac disease in Southern Derbyshire for the years 1958-2014 with regard to diagnosis rates and causes of mortality.

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: DERBY TEACHING HOSPITALS NHS FOUNDATION TRUST
Source reference: DARS-NIC-389767-B0C0M-v1.3
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

This is a study of the epidemiology of coeliac disease in Southern Derbyshire for the years 1958-2014 with regard to diagnosis rates and causes of mortality. This will yield important information about the epidemiology of coeliac disease in the UK over the last half century.The cohort was originally obtained from patients under the direct care of the applicant whilst they were a practising clinician. The applicant has already received death certificates for the years to 2008 from ONS under MR1026

Register reference: DARS-NIC-389767-B0C0M-v1.3
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 1

Data approved

MRIS - Cause of Death Report

Objective, as published

Expected benefits, as published

The results of this study will be targeted towards relevant commissioners and clinicians (through peer-reviewed journals and aforementioned conferences)who are managing coeliac disease. This will enable them to make improved commissioning decisions about the number of diagnoses that they should be seeing in their areas and the size of the health risks that patients run with particular emphasis on cancer. This is particularly important because it is known that coeliac disease is presently underdiagnosed in the community and if identified can be treated successfully with a gluten free diet, having a positive impact on direct patient care.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/23861/Release-Register-December-16---February-17/xls/Release_Register__December_16_-_February_17.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.