CHELSEA AND WESTMINSTER HOSPITAL NHS FOUNDATION TRUST: The National Neonatal Research database (NNRD) is a source of information that utilises routinely collected NHS electronic clinical data for academic research, with the aim of supp

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: CHELSEA AND WESTMINSTER HOSPITAL NHS FOUNDATION TRUST
Source reference: DARS-NIC-387462-R0L8Z-v1.3
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-387462-R0L8Z-v1.3
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 27

Data approved

Office for National Statistics Mortality Data
Hospital Episode Statistics Outpatients
Hospital Episode Statistics Admitted Patient Care
Hospital Episode Statistics Accident and Emergency

Objective, as published

The National Neonatal Research database (NNRD) is a source of information that utilises routinely collected NHS electronic clinical data for academic research, with the aim of supporting neonatal services and improve healthcare delivery and health outcomes for babies admitted to neonatal units. The NNRD has been created through the collaborative efforts of neonatal services across the country to be a national resource. The NNRD is maintained and managed at the Neonatal Data Analysis Unit (NDAU), an independent academic unit based at the Chelsea and Westminster Hospital NHS Foundation Trust (CWHFT) campus on behalf of Imperial College London. Birth records are an important resource for perinatal/neonatal research. Electronic health records offer potential to reduce the cost and complexity of data acquisition, and the demand placed on participants when information on long-term outcomes is sought. As such data from the NNRD, Hospital Episode Statistics (HES) and Office for National Statistics (ONS) mortality data is used in combination for research analysis. The purpose of the project is to examine mortality, resource utilisation, re-admission rates and secondary care activity following discharge from a neonatal unit over several years, for a cohort of infants born between 1st April 2006 and 31st March 2015 and followed up as far into childhood as made possible by the data. Linkage between a cohort of infants, created by linking NNRD to HES records, and HES/ONS Mortality to bui…

Expected benefits, as published

The results will fill a gap in knowledge about which groups of babies are at higher risk of admission to hospital, what conditions they present with and how many babies die in the early childhood. Results will enable health professionals to focus preventive care towards babies most at risk of hospital admissions and death. For example, by producing information about the peak age at which some respiratory infections occur, it may be possible to target vaccines better. The study will enable babies admitted to all neonatal units in the country of which premature birth is one group to be monitored after their discharge from hospital. This work will allow better estimates of long term health problems in infants admitted to neonatal units for clinical studies evaluating new health interventions…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/23861/Release-Register-December-16---February-17/xls/Release_Register__December_16_-_February_17.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.