UNIVERSITY OF OXFORD: The University of Oxford’s Big Health Data Group (BHDG) is undertaking two distinct research studies that require data from the National Joint Registry (NJR) linked with Hospital E

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University of Oxford
Source reference: DARS-NIC-366845-Q1F0Q-v0.18
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-366845-Q1F0Q-v0.18
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 10

Data approved

Hospital Episode Statistics Admitted Patient Care
Patient Reported Outcome Measures (Linkable to HES)

Objective, as published

The University of Oxford’s Big Health Data Group (BHDG) is undertaking two distinct research studies that require data from the National Joint Registry (NJR) linked with Hospital Episode Statistics (HES) and Patient Reported Outcome Measures (PROMs) data from NHS Digital. The same individuals, all of whom are substantive employees of the University of Oxford, will undertake both studies at the Botnar Research Centre at the Nuffield Department of Orthopaedic, Rheumatology & Musculoskeletal Science (NDORMS). STUDY 1: STAR - POST SURGICAL PREDICTORS OF CHRONIC PAIN AFTER TKR The main reason that people undergo knee replacement is to alleviate pain. However it is recognised that around 20% of patients experience long-term post-surgical pain. The potential value of identifying patients at risk of long-term pain and targeting interventions is clear, but existing models have low predictive power, particularly for pain related outcomes. Given the difficulties around pre-operative prediction of long-term pain, it is important to consider post-operative factors. An operation itself is an important risk factor for long-term pain, and factors relating to the operation and early recovery may be of greater importance than pre-surgical factors. In the context of major orthopaedic surgery, interventions targeting post-operative determinants of outcomes are likely to be more beneficial than pre-surgical interventions. Research is required into the post-operative determinants of long-term out…

Expected benefits, as published

STUDY 1: STAR POST SURGICAL PREDICTORS OF CHRONIC PAIN AFTER PRIMARY TOTAL KNEE REPLACEMENT SURGERY The dissemination of the findings of this study is intended to benefit health care by improving understanding of the reasons why patients suffer long-term pain after knee replacement and therefore how best to prevent or manage it. The study aims to provide crucial pieces of information to aid this understanding, as identification of post-operative factors associated with long-term pain is expected to pave the way for the development of interventions to prevent and manage this kind of pain. First, by providing evidence about how to proactively identify patients who are most likely to go on to experience long-term pain following surgery, the study is a building block in the development and ev…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/24614/Release-Register-March---May-2017/xls/Release_Register__March_-_May_20171.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.