University of Oxford: Sponsorship: The National PROMs data is requested as part of a DPhil research project with the title ‘Missing data in Patient Reported Outcome Measures’.

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University of Oxford
Source reference: DARS-NIC-358191-T5P4G-v0.4
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-358191-T5P4G-v0.4
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 8

Data approved

Hospital Episode Statistics Admitted Patient Care
Patient Reported Outcome Measures

Objective, as published

Sponsorship: The National PROMs data is requested as part of a DPhil research project with the title ‘Missing data in Patient Reported Outcome Measures’. The DPhil project is funded by the Medical Research Council (MRC) and the Nuffield Department of Population Health at the University of Oxford. The MRC’s mission statement (http://www.mrc.ac.uk/about/mission/?nav=sidebar) is described as follows: “The heart of our mission is to improve human health through world-class medical research. To achieve this, we support research across the biomedical spectrum, from fundamental lab-based science to clinical trials, and in all major disease areas. We work closely with the NHS and the UK Health Departments to deliver our mission, and give a high priority to research that is likely to make a real difference to clinical practice and the health of the population.” By receiving this prestigious funding, the proposed project is recognised by the funders to have a beneficial impact on clinical practices and the health outcomes of the population. Support from relevant groups in health and social care: Through the receipt of funding by the MRC and Department of Population Health, University of Oxford, the project is directly supported by those groups. More precisely, senior academics from the Health Economics Research Centre, the Health Services Research Unit and the National Perinatal Epidemiology Unit are directly supervising the project. The proposed project is a methodological study look…

Expected benefits, as published

Patient reported outcome measures (PROMs) have increasingly gained prominence in the NHS for routine care and research in recent years particularly in areas, such as hip or knee replacement, hernia repair, to assess the effects of surgery and other interventions on health and quality of life. They form an important addition to long term clinical outcomes, which are not able to capture patients’ perceptions of their individual experiences outcomes with regards, to the results of an intervention or disease burden. However, as the use of PROMs within the NHS is still relatively new, more research is needed in this area to better understand and interpret results used for clinical decision making. A particularly important area for research is the occurrence of missing data within PROMs, as the…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/23167/Data-Release-Register-September---November-2016/xls/Data_Release_Register__September_-_November_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.