University Hospitals Bristol NHS Foundation Trust: The aim of the study is to evaluate the feasibility of setting up a UK multicentre registry to document cardiac magnetic resonance imaging (CMR) use in patients who present to the

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University Hospitals Bristol NHS Foundation Trust
Source reference: DARS-NIC-319738-F3W3L-v0.2
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-319738-F3W3L-v0.2
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 13

Data approved

Office for National Statistics Mortality Data (linkable to HES)
Hospital Episode Statistics Admitted Patient Care
Hospital Episode Statistics Outpatients
Hospital Episode Statistics Critical Care
Hospital Episode Statistics Accident and Emergency

Objective, as published

The aim of the study is to evaluate the feasibility of setting up a UK multicentre registry to document cardiac magnetic resonance imaging (CMR) use in patients who present to the hospital with a suspected heart attack and activate the primary percutaneous intervention (PPCI) pathway (index admission). Patients were recruited from 4 centres (2 with and 2 without CMR) and data was collected on basic demography, clinical characteristics on presentation, peri-procedural (PPCI) characteristics, biochemistry and imaging reports (echocardiography and CMR imaging) by linking local NHS databases. The Trust wish to link their database with HES /ONS mortality data to:  Record subsequent inpatient, accident and emergency, critical care, outpatient activity and mortality in the year following the index PPCI admission. The data will be used to describe the patient cohort by centre;  Identify co-morbidity in the patient cohort using diagnosis codes in the record of the index admission and diagnosis codes in records in the year preceding the index admission;  Evaluate resource use for the health economic analysis. One of the objectives of the feasibility study is to define a “proxy” primary outcome (which will be used in the registry) that represents a definitive change in patient management, conditional on having had CMR, that will be credible to cardiologists and other stakeholders as a measure of the “value added” by doing CMR. The treatment/process outcomes that represent a definiti…

Expected benefits, as published

The benefits to health and social care are twofold: 1) Benefits of the feasibility study to health and social care (basis of the current application for HES data). The following benefits are anticipated: a. If feasible, the registry will be rolled out nationally and the Trust will be in a position to answer the question about the effectiveness of cardiac MRI in the study population; b. The feasibility study (and the composite outcome that will be defined using HES data) will also inform the commissioning of future research to address other research questions likely to improve NHS care and thus to benefit patients. These benefits will be realised when the Trust disseminate their findings and the report to the funder. 2) Benefits of the registry to health and social care (if the feasibility…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.