University of Liverpool: Over the years, the Roy Castle Lung Cancer Research Programme (RCLCRP) has been at the forefront of ground breaking research in early detection of lung cancer.

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University of Liverpool
Source reference: DARS-NIC-311179-R5V5Y-v0.2
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-311179-R5V5Y-v0.2
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 15

Data approved

Hospital Episode Statistics Accident and Emergency
Hospital Episode Statistics Admitted Patient Care
Hospital Episode Statistics Outpatients

Objective, as published

Over the years, the Roy Castle Lung Cancer Research Programme (RCLCRP) has been at the forefront of ground breaking research in early detection of lung cancer. Lung cancer is the leading cause of cancer-related death in most developed countries, with mortality rates exceeding that of colon, breast and prostate cancer combined (Jemal et al, 2010; Siegel et al, 2011). Given that more than 94% of the patients diagnosed with lung cancer in the UK die of the disease within five years, the primary objective is to detect lung cancer at an earlier, potentially more curable stage (5-year survival rate of stage IA tumour is ~70%). Lung cancer is predominantly a disease of the elderly, with an average age at diagnosis of around 60-70 years, and often presented very late at an advanced stage (Alberg et al, 2007; Dela Cruz et al, 2011). Although the pathogenesis of lung cancer is not yet fully understood, researchers have suggested the potential role of the occurrence of concomitant diseases in the aetiology of lung cancer. Due to increasing longevity and rapid ageing populations, the number of people with more than one comorbid conditions is expected to increase sharply in the coming decades (van den Akker et al, 1998; Yancik et al, 2001). This increase might lead to an increase in the incidence of lung cancer and the comorbidity burden might lead to increase overall and/or lung cancer-specific mortality. To this end, a documentation of previous history of diseases is essential for expl…

Expected benefits, as published

Past Benefits 1. Report for RCLCF This report is a requirement of the funding body to ascertain that adequate outputs are produced from their financial contribution and be accountable to the general public and its trustees as to exactly how and for what purpose voluntary public funding is being utilised in the name of Lung Cancer Research. It is imperative that the RCLCF is satisfied that the RCLCRP is constantly finding and utilising all information available to it to further develop and prove the accuracy of the LLP Risk Model when used as an early detection tool for Lung Cancer. Risk Prediction models incorporating multiple risk factors have been recognised as a method of identifying individuals at high risk of developing lung cancer. Thus accurate selection of high-risk individuals fo…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.