Barts Health NHS Trust: 1.

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation

Barts Health NHS Trust

Source reference

DARS-NIC-226652-N1G2N-v0.0

Jurisdiction

England

Licence

Open Government Licence v3.0, subject to NHS England terms and exclusions

1. To establish whether women who should have been invited for breast screening and were not, have died from breast cancer, possibly resulting from inappropriate ceasing of screening. 2. To establish whether any women who are recorded as having died are in fact still alive and not being offered breast screening and are at risk of an undetected cancer progressing. Background Following the identification of an SUI in 2011 relating to the incorrect removal (‘inappropriate ‘ceasing’) of a woman from the breast screening programme by the Central and East London Breast Screening Service (CELBSS) it

Register reference

DARS-NIC-226652-N1G2N-v0.0

Agreement period

not published to no end date published

For commercial purposes (as marked in the register)

Not stated

Release files listed by NHS England

2

Data approved

• MRIS - Flagging Current Status Report
• MRIS - Cause of Death Report

Objective, as published

1. To establish whether women who should have been invited for breast screening and were not, have died from breast cancer, possibly resulting from inappropriate ceasing of screening. 2. To establish whether any women who are recorded as having died are in fact still alive and not being offered breast screening and are at risk of an undetected cancer progressing. Background Following the identification of an SUI in 2011 relating to the incorrect removal (‘inappropriate ‘ceasing’) of a woman from the breast screening programme by the Central and East London Breast Screening Service (CELBSS) it was agreed that an audit should be undertaken of all women with a ‘ceased’ status for breast screening within the Central and East London Breast Screening Service and related Exeter databases. The total number of women in the audit was 2299. That audit has been completed, with the exception of those women recorded as being deceased, a number of whom were ceased from the programme before their death. 1019 were recorded as deceased by the breast screening programme. We are seeking more information on that cohort, to confirm they have deceased and whether they died of breast cancer. We can provide the complete details of those women to HSIC.

Expected benefits, as published

The avoidance of harm to women who should have been offered breast screening, but remain outside the programme. These women could be offered screening as soon as they are identified with the data provided. Establishing whether significant harm resulted from the incorrect removal from the programme, such that women had an undetected cancer which killed them. Not only is this important information for the service, patient’s families have a right to know. There will be no commercial benefits from this work. It is not research and will not be published in a scientific journal.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.