Royal College of Physicians of London: Linkage of SSNAP patient records with ONS death data, to determine patient outcomes (such as survival at 30 days, 6 months and 1 year post stroke), so that the quality of care deli

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: Royal College of Physicians of London
Source reference: DARS-NIC-165012-9JHGZ-v0.0
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-165012-9JHGZ-v0.0
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 30

Data approved

MRIS - Cohort Event Notification Report
MRIS - Cause of Death Report
MRIS - Flagging Current Status Report
MRIS - Scottish NHS / Registration

Objective, as published

Linkage of SSNAP patient records with ONS death data, to determine patient outcomes (such as survival at 30 days, 6 months and 1 year post stroke), so that the quality of care delivered can be compared with the outcome for patients and linkage with HES data to identify readmissions and further strokes (again so that the quality of care can be compared with the outcome for patients) as well as the case ascertainment of audit participants (the proportion of their coded stroke patients which are recorded in the audit), which is important for contextualising the outcomes. Teams submitting data to SSNAP will be updated with death data via the same secure system they enter the patient identifiable audit data into. Teams are required to carry out a six month follow-up assessment of patients and accessing the death data is important so that teams can know which patients to contact for the appointment. The data will also be used for producing outcome statistics at various levels including at national level, CCG level and hospital level where appropriate. Any data reported on is carefully considered in terms of whether it could be potentially identifiable and advice is given on how the outputs should be interpreted.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.