University of Bristol: The Avon Longitudinal Study of Parents and Children (ALSPAC) is a prospective birth Cohort study with detailed biological and behavioral data from before birth through till late ad

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University of Bristol
Source reference: DARS-NIC-148033-FMST7-v0.0
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-148033-FMST7-v0.0
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 5

Data approved

MRIS - Cohort Event Notification Report
MRIS - Cause of Death Report
MRIS - Scottish NHS / Registration

Objective, as published

The Avon Longitudinal Study of Parents and Children (ALSPAC) is a prospective birth Cohort study with detailed biological and behavioral data from before birth through till late adolescence and is organised as a resource for the whole scientific community (www.alspac.bris.ac.uk). Past assessments of ALSPAC participants have substantially been based on postal questionnaires, study clinics and increasingly through information obtained through linkage to routinely collected data. The data collected via this arrangement will be processed and provided in a suitably secure and non-disclosive form to our research collaborators. The ALSPAC resource is used extensively to investigate a wide range of research questions. To date there have been over 450 publications (http://www.bristol.ac.uk/alspac/sci-com/pubs/) with many more topics being actively investigated. Additionally these data will be used in an administrative function to help prevent causing distress to our study families through contacting them if there has been a bereavement. Embarkation and health authority data are used in our cohort tracking and tracing initiatives. ALSPAC conduct many data extraction and linkage projects in order to answer our research questions. The use of NHS ID number allows for greater efficiency and accuracy. ALSPAC will provide full information and seek prior approval from NHS IC before commencing any research projects using the NHS ID number.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.