Breast Test Wales: The primary aim of the study is to estimate the benefit of annual mammographic surveillance in terms of reducing late stage breast cancer and mortality from the disease in women ag

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation

Breast Test Wales

Source reference

DARS-NIC-147949-WJKL8-v0.7

Jurisdiction

England

Licence

Open Government Licence v3.0, subject to NHS England terms and exclusions

The primary aim of the study is to estimate the benefit of annual mammographic surveillance in terms of reducing late stage breast cancer and mortality from the disease in women aged 40-49 (ie below the age limit of the national screening programme) with a significant family history of breast cancer. This will be done by ascertaining cancers and their prognostic attributes in women undergoing this surveillance, estimation of the expected mortality from these, and comparison of the mortality expected in the absence of the surveillance. With the high media profile of breast cancer there is incre

Register reference

DARS-NIC-147949-WJKL8-v0.7

Agreement period

not published to no end date published

For commercial purposes (as marked in the register)

Not stated

Release files listed by NHS England

7

Data approved

• MRIS - Cause of Death Report
• MRIS - Cohort Event Notification Report
• MRIS - Scottish NHS / Registration

Objective, as published

The primary aim of the study is to estimate the benefit of annual mammographic surveillance in terms of reducing late stage breast cancer and mortality from the disease in women aged 40-49 (ie below the age limit of the national screening programme) with a significant family history of breast cancer. This will be done by ascertaining cancers and their prognostic attributes in women undergoing this surveillance, estimation of the expected mortality from these, and comparison of the mortality expected in the absence of the surveillance. With the high media profile of breast cancer there is increasing awareness of family history of the disease in the population and a subgroup with a sufficient family history to confer a trebling of risk is increasingly presenting to primary care and genetics services. There is an urgent need to develop and evaluate surveillance and preventive services to manage this subpopulation.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.