IMPERIAL COLLEGE LONDON: The aim is: (a) to examine whether measures of emphysema/bronchiestasis collected in 2003/2004 predict mortality (b) to see whether longitudinal changes in airway inflammation, lun

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation

Imperial College London

Source reference

DARS-NIC-02077-R7M9C-v0.0

Jurisdiction

England

Licence

Open Government Licence v3.0, subject to NHS England terms and exclusions

The aim is: (a) to examine whether measures of emphysema/bronchiestasis collected in 2003/2004 predict mortality (b) to see whether longitudinal changes in airway inflammation, lung function decline and exacerbation frequency predict mortality Previously, it has been shown that frequent exacerbations of COPD are associated with increased mortality but the mechanisms remain to be elucidated. Frequent exacerbations are associated with greater emphysema and bronchiectasis (airway wall thickening). Imperial College’s initial objective is to examine whether indices of emphysema and bronchiectasis p

Register reference

DARS-NIC-02077-R7M9C-v0.0

Agreement period

not published to no end date published

For commercial purposes (as marked in the register)

Not stated

Release files listed by NHS England

2

Data approved

• MRIS - Cause of Death Report

Objective, as published

The aim is: (a) to examine whether measures of emphysema/bronchiestasis collected in 2003/2004 predict mortality (b) to see whether longitudinal changes in airway inflammation, lung function decline and exacerbation frequency predict mortality Previously, it has been shown that frequent exacerbations of COPD are associated with increased mortality but the mechanisms remain to be elucidated. Frequent exacerbations are associated with greater emphysema and bronchiectasis (airway wall thickening). Imperial College’s initial objective is to examine whether indices of emphysema and bronchiectasis previous acquired by CT scanning predict mortality. The data was collected in 2003/2004 on 54 patients. Imperial Colleges were one of the first groups to CT scan COPD patients and therefore this would have one of the longest follow-up periods available.

Expected benefits, as published

The results will help physicians to estimate a COPD patient’s life-span. This will be useful in guiding therapeutic intervention and explaining to patients the need to modify behaviour and life-style. The study is academic research only and is in no way commercial.

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/23167/Data-Release-Register-September---November-2016/xls/Data_Release_Register__September_-_November_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.