University College London (UCL): This agreement supersedes NIC-330769-C9Y8Y as a new DSA Improving the transition of young people from child-centred to adult-centred health care systems has been a health policy pr

Data-sharing agreement from NHS Digital registers of approved data releases, 2014–2019. Evidence status: source reported.

Organisation: University College London (UCL)
Source reference: DARS-NIC-00656-V0Z4C-v0.0
Jurisdiction: England
Licence: Open Government Licence v3.0, subject to NHS England terms and exclusions

Register reference: DARS-NIC-00656-V0Z4C-v0.0
Agreement period: not published to no end date published
For commercial purposes (as marked in the register): Not stated
Release files listed by NHS England: 38

Data approved

Hospital Episode Statistics Accident and Emergency
Hospital Episode Statistics Admitted Patient Care
Hospital Episode Statistics Critical Care
Hospital Episode Statistics Outpatients
Office for National Statistics Mortality Data

Objective, as published

This agreement supersedes NIC-330769-C9Y8Y as a new DSA Improving the transition of young people from child-centred to adult-centred health care systems has been a health policy priority for successive governments. There is clear evidence that poor transitions result in poor health outcomes, particularly related to drop-out from healthcare at a key time in chronic disease management. Conversely, there is now reasonable quality evidence that improving transitions improves outcomes in diseases such as diabetes and chronic renal disease/transplantation. Such evidence has resulted in a decade of clear guidance to health services on the importance of providing good transitional care in England. Yet despite this, and subsequent DH initiatives, such as the Transitions Champions programme, there appears to have been little change in the majority of health services in England. It is anecdotally believed that the majority of young people with long-standing conditions in England do not receive appropriate transitional care, although routine data on transitional care are not collected. The objective for processing the data is to investigate, using a contemporary UK sample, the effect of transitioning from paediatric to adult care on indicators of illness management relating primarily to health service usage. UCL will also investigate how specific features of the transition to adult services are associated with these outcomes to contribute to the evidence-base regarding the features of s…

Expected benefits, as published

Improved transition-related health policy 2) This research will guide Department of Health policy on the need, as well as specific policy measures, for improving transitions from paediatric care. This research will inform policy recommendations regarding appropriate age of transition and measures for reducing upheaval to service provision during the transition to adult services including frequency of appointments in late paediatric care and improving retention in adult services. 3) The development of recommendations of quality indicators for health transition. 4) UCL will develop recommendations of indicators of high-quality transition (based on the outcomes studied within the research). With support from the Department of Health, these recommendations would help health services identify…

Source: https://webarchive.nationalarchives.gov.uk/ukgwa/2019/http://content.digital.nhs.uk/media/22305/Data-Release-Register-April-to-August-2016/xls/Data_Release_Register__April_-_August_2016.xlsx. Captured 2026-10-30.

Limitations: Agreement as recorded in an NHS Digital register of approved data releases (2014–2019), retrieved from the UK Government Web Archive. That register lists releases made in its period and the agreement's purpose statement as it then stood; it gives no agreement dates, and the agreement may have changed since. Imported only where a paper quotes a reference no current register holds.